2nd and 3rd weeks after round 1

It's been awhile since I've posted only because things have been great. There really hasn't been much to post about other than the day to day life of a mom. After about Thursday the 15th I really started to feel like myself again. By Saturday I was eating better and able to really get out and continue life as normal. I spent all last week enjoying time with friends, walking almost every day along the beach, and being a mom to my boys and a wife to my sweet husband. 

I did start noticing my hair falling out more than usual last Thursday.... that's been interesting. I was walking with some friends and we were talking about if I've noticed any changes in my hair. I said no and then decided to try running my fingers through my hair, big mistake, a lot more than normal came out and each day there has been more and more. My scalp hurts when I touch it and especially when I lie down to sleep. It feels like I've had my hair in a tight ponytail all day. Sleeping was hard last night and I'm noticing my hair is just getting thinner and thinner. I'm not sure how much longer it's going to last, so below is one of the last pictures I'm going to have hair in. I just felt like I needed to document it. I've asked Max and Tate to shave their heads with me, and I laugh as I write this thinking back to Max's reaction. He seriously will NOT do it. He says he likes his hair too much. Hilarious. Tate is completely ready whenever I am, so I'm glad one of my boys is willing to do it with me. (I didn't give Porter the option, I like his blonde hair too much!)

We had a great time tonight celebrating sweet Porters 2nd birthday. He is such a sweet little toddler. I really think he was sent to me straight from heaven with the sweetest disposition. He brings us so much joy and is literally the easiest boy. He never gets into anything and is content just being home playing with toys or watching a movie. He is the snuggliest little guy and when he's tired or needs a nap he asks to go to bed. He still takes 3 hour naps! He really is too good to be true, but Heavenly Father knew I needed this little guy and I am so grateful.

Well life is good and I feel ready for my second treatment on Wednesday. I feel like I was in a little bit of a funk before and a little while after my first treatment. I wasn't really myself. Even looking back on the posts I've written, I'm glad I have them to refer to, but I'm grateful to feel how I feel now. This is going to be a roller coaster ride, but if I can remember whenever I'm down that I'll climb right back up then that will keep me going. 

Days are slow, but life is good

It's now been almost a week since my first treatment. I am tired and I'm not able to eat much. Only really bland foods (cereal, bread, bananas) I'm trying my best to keep drinking fluids, which has been hard and eat anything that sounds good to me. 

Thursday and Friday were the easiest and then the nausea started to get worse Saturday. I had plans to take my sweet mom out for lunch, a pedicure and then to the ward play on Saturday, but we only got to get a pedicure and ran into the grocery store. I was so exhausted. Once we got home and were going to head to the play I couldn't get off the couch to get anything done. I went right to sleep and taking a nap helped. I was able to go with Joe to a birthday party for a friend of Tates and then I even made it out to dinner and a movie with Joe and some friends. 

Sunday was the best mothers day ever. I can't even explain how special my boys made it for me. I love them all so much! Max and Tate were so excited and had their gifts wrapped and ready for when I came downstairs. Tate was first and he made me a beautiful fan and a necklace with stones he painted. Max made me the cutest flower magnet for my fridge and he wrote me a poem. Joe went above and beyond and got me a "mum" mug and a jacket and he organized with a friend of mine to have her make me a beautiful quilt. It's seriously amazing! Thank you Becca:) My mom even got me a darling little tea set that I absolutely love. We headed off to church and since I wasn't feeling well (nausea) I took my first backup nausea pill. It made me tired. I was going to try to stay for all of church, but ended up only making it though sacrament meeting. Porter was having a day and I didn't really have any energy, so my mom and I came home and put him down for a nap. I was able to nap a little and when Joe got home, I was feeling a little down. It was so nice to have him come home and snuggle me while I cried. I'm telling you I am a rollercoaster of emotions right now, one minute I'm fine, the next I'm a mess. Once I got it all out, I felt better so we took the boys on a drive out to Caversham park for a play and to explore. It was a nice afternoon, but again it wore me out and I fell asleep on the drive home and had to rest when we got home while Joe and my mom made dinner. It really was a great day and I have my mom and my sweet husband and my sweet boys to thank for that. 

Monday morning I was feeling sick again and took another backup medicine. I think I've realized that if I am able to eat right when I get up it makes it more bearable (morning sickness). I was able to get ready and take porter on a walk which was nice. I had a dr appointment in the afternoon so Joe came home early and I had to pick the boys up early from school. We took them down so they could play at the park across from the hospital with the huge slide. It started raining like crazy so that was short lived, but it was nice to be together. 

Today has been probably my hardest day so far. I've felt the most nauseous today. I woke up and had good intentions of making the kids pancakes and getting their lunches together. I made the mix and put one pancake on and then I couldn't do it... thank heavens my mom is here. She took right over and got the kids out the door. I'm not quite sure what I'm going to do with out her, I'm a little nervous about taking over completely. 

I honestly think the hardest part of all of this so far hasn't been the side effects from chemo. It's the emotional side effects. I'm either up or down... it's been hard to stay even and normal. It's hard to look past the next few months and keep perspective on how fast time goes by. The days are moving so slowly and I am trying my best to enjoy each moment I feel good with my kids. I have slowed way down and I know I'm learning so much about myself and about what's important to me. I love talking and hearing from all my friends and family. Your words and encouragement mean the world to me. I'm trying my best to respond to each of you, but know if for some reason I haven't gotten back to you I have appreciated it and it has helped bring a smile to my face or helped answer a prayer. 

xoxo,

Tori

One down

Today was a big day and the lead up to it was full of anxiety for me. It couldn't have gone smoother though.

Joe and I dropped the older boys off at school and headed straight to the hospital to meet with my oncologist. I will continue to meet with her every 3rd week before my treatments. She gave me 3 different back up medicines for nausea (to use after my treatment) and told me not to hesitate to use any/all of them if I'm feeling any nausea. In the week leading up to my treatment I had to do a blood test and a heart echo. She told me both came back good, I'm just a little vitamin D deficient so I have to go on a supplement. No big deal really. She's pretty amazing and when we said goodbye to her to head off to chemo she told me I would do great. I don't know why that was so reassuring to me, but it helped me feel super positive about everything. 

Joe and I then headed down to the pharmacy so they could fill my drugs and send them over to the hospital (which is next door). Ironically when I checked in for chemo I was admitted to the last room I was in when I was at the hospital for my prior surgery. Yes, you read that right, I got my own hospital room to sit in while the chemo was administered. This made it so much nicer and easier. I was really able to rest, watch tv, and visit with Joe, my mom and a friend who came in to see me. The nurses told me I can request a room every time since my treatments every week will be 3+ hrs with the chemo combo I'm being given TCH. I'm super happy about that! The actual chemo room is small and cramped and I would be the youngest one in there by years. Not fun.

Once in the room they accessed my port by inserting a huge needle. It hurt so bad! The nurse ended up giving me numbing some cream I will be able to put on before they access it next time. Getting that port accessed was literally the worst part. The nurse then started my series of drugs with an antihistamine. Next went herceptin for 90 minutes. This first treatment will be my longest herceptin treatment, from here they go down to 30 minutes every 3 weeks. I was told I could get chills with this one, I didn't. While the herceptin was being administered I had extreme restlessness and was kinda freaking out. I wanted to pull out my port and was super annoyed. When I asked the nurse what was going on she said it was from the first antihistamine and some people can react the way I was. She told me to see if we can change up that drug next time. I think I will. I was freaking out for a good 1/2 hour.

Next was my first actual chemo drug and they had to start this one out slowly. It's the one people most commonly react to. I was told to look for back pain and redness/flushing and fever. Luckily I had none. There is a possibility that I could still react next time, but I don't think I will. My third drug was easy and went quickly. After my third drug they flushed my port, took out the needle and sent me on my way. Super easy and luckily I felt the same leaving the hospital as I did going in.

It was a long day. We arrived at the hospital at 9:40 am and didn't leave until 5:30 pm. Poor Joe didn't eat lunch while we were there, so we decided to head to dinner after. We tried a new place near the hospital called the Varsity which was the most american food I have ever had in Perth. It was super yum. They even had all our american sodas including rootbeer, cherry coke, dr. pepper and hawaiian punch (this is pretty much a huge deal for us) and they served them with a TON of ice. I felt right at home and it helped with the homesickness I've been feeling. 

I do feel like am one lucky girl and feel so grateful to have such a wonderful supportive man at my side through all this. He truly inspires me and makes me know I can do this and I will get through it and be okay. One more person I could not have made it through the past 5 weeks without is my sweet mom. She has been here and has been my cook, cleaning lady, babysitter, driver, and most of all my friend. I love her and am so happy I get to spend this mothers day with her. It's the best gift I could get for mothers day, having her here. 

I truly feel all of the prayers that are being said in my behalf. It's one of the most amazing things I have ever experienced. The power of prayer is real and a friend of mine just sent me an email I just have to share what she wrote because I know it is true she said "The beauty is the influence of prayer is not restricted by geography, time zones, income, or public image and knowledge." Thank you Jen! You inspire me every day. The power of prayer has reached me and I know it's real so thank you for all your prayers. They mean the world to me and lift me up and inspire me. I have faith I will be healed and I will be okay. It may not be easy, but I know it will be worth it. 

Thanks for sending this to me Georgia. I love it!

This is real

These past few days have been hard. I have found myself getting down and feeling very emotional when I think about my life before cancer. I yearn for it. I miss home and my life before. I struggle when I think about what the near future holds for me, what to expect, how am I going to get through it. 

Lately I've had interesting thoughts, emotions and feelings as I look through Instagram and Facebook. Something I used to and still love to do has become harder and more painful to me. It makes me miss my family and my friends like crazy. It also makes me feel a little jealous and unsettled, everyones lives seem perfect. I know this isn't true and everyone has their own struggles, but its sometimes hard to keep perspective. The ability to see the good in others lives is so much easier than seeing the good in our own especially over social media. I'm trying to focus on seeing all the good in my life. I have been truly blessed and no cancer diagnosis is going to take that away from me. I have a wonderful life and I want to be able to be grateful and remember that through all of this. 

Everyone has their days where life is going to suck and be hard and get you down, but the important thing in those moments is to not shrink. I keep trying to remind myself this. I just finished reading an excerpt from Elder Bednars new book where he talks about Elder Maxwells battle with cancer. He says.... In his October 1997 general conference message, Elder Maxwell taught with great authenticity: “As we confront our own . . . trials and tribulations, we too can plead with the Father, just as Jesus did, that we ‘might not . . . shrink’—meaning to retreat or to recoil (D&C 19:18). Not shrinking is much more important than surviving! Moreover, partaking of a bitter cup without becoming bitter is likewise part of the emulation of Jesus.” (Apply the Atoning Blood of Christ,’” 22).

It's all going to become a reality this week. Chemo starts Wednesday. This is my life right now and I'm struggling with being okay with it. It's hard. It's hard to think about my life before all this. I pray I can be like Elder Maxwell and not shrink. I pray I can learn from this trial I have been given because learning and growing will make it all okay.

xoxo,
Tori